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Old 10-30-2010, 10:23 PM
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Does anyone have celiac, and/or grain allergies?

I am currently working with a nutritionist to figure out why my body is freaking out. We have determined that I do not tolerate gluten at all, but whenever I eat grains in general lately (particularly rice), my tummy blows up like a balloon, my digestion goes haywire, and my stomach freakin HURTS. My diet is really healthy, but my guts are in distress. .. I may just get allergy tested--the tests are expensive--but I am working on eliminating certain foods first to see if that helps. I stopped eating grain three days ago because I was so uncomfortable, and my waist shrank two inches (from not being bloated).

Does anyone else have celiac, or an allergy to wheat or grains? If so, how did you determine it, and how are you healing your guts? Right now I am eating a high produce diet with sufficient protein, and I am adding in probiotics. If the nutritionist and I don't make progress, I will check in with the doc. Want to feel better...
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Old 10-31-2010, 11:37 AM
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I do no have celiac disease, but my best friend does. She had the same problems you did with her digestive system, and was put on a strict gluten free diet by her doctor. After changing her diet her tummy went back to normal, and would only act up if she accidentally ate some gluten. She always has been a healthy eater.
If you have had 3 days success cutting out grains, I would stay stick with it. Cutting out gluten completely is hard, anything you wouldn't consider a bread/grain product could still contain gluten since it is a protein.
Maybe check out some gluten free websites, and try a GF diet for a while?
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Old 10-31-2010, 11:42 AM
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I do no have celiac disease, but my best friend does. She had the same problems you did with her digestive system, and was put on a strict gluten free diet by her doctor. After changing her diet her tummy went back to normal, and would only act up if she accidentally ate some gluten. She always has been a healthy eater.
If you have had 3 days success cutting out grains, I would stay stick with it. Cutting out gluten completely is hard, anything you wouldn't consider a bread/grain product could still contain gluten since it is a protein.
Maybe check out some gluten free websites, and try a GF diet for a while?
Yeah, that's what we've determined so far--no gluten. And now I'm finding out that my body doesn't seem to like grains (even gluten free ones) in general--maybe once in a while after things are healed up a bit internally.. . ? I have heard of some celiacs needing to cut out grains entirely. I'm finding some nice substitutions for making things at home, but I am sad not to have pasta anymore.. I am an Italian girl--that's a big deal!
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Old 10-31-2010, 11:45 AM
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After a while her body would accept things that she couldn't handle at first. It has been about 8 years since her diagnosis, and she can sneak a little bit of gluten and be ok. Whenever she was first diagnosed one bite would put her in bed for the rest of the day/night.
Have you been to a health food store and checked out the GF pasta? I used to make GF lasagnas all the time.
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Old 10-31-2010, 12:07 PM
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I'm intolerant to gluten, but I've never been officially diagnosed. When I was having severe symptoms, I begged 2 different doctors to test me, but they refused (totally ridiculous). I tried an elimination diet - I basically stopped eating all wheat products and my symptoms disappeared. I had been retaining water really badly - a pair of jeans would fit one day and then the next day I couldn't even get them buttoned. I gain 10-15 pounds in water weight, had severe constipation, and migraines. I changed my diet and lost the weight in a week - it was unbelievable.

I had been diagnosed with Hashimoto's Thyroiditis about a year and a half prior to this. I put on weight during that time and figured it was all related to my thyroid. Even when I was medicated, my symptoms didn't completed go away. I was beyond frustrated with doctors, no one would listen to me and all they would say was that my thyroid levels were fine on medication and that I shouldn't be having symptoms. I finally tried the diet and it was a miracle for me. In doing some research online, I found out that people with one autoimmune disorder (like Hashimoto's) are more likely to have another, like Celiac. I don't know if I indeed have Celiac, but there is no way I will go back to eating wheat, it makes me feel miserable.

If you are unable to get help from doctors, try eliminating certain foods from your diet and see how you feel. Good luck, I know it is tough!
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Old 10-31-2010, 12:10 PM
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Thanks for the advice!--Yes, I have found some really nice GF pastas and a GF pizza mix--they are often made with brown rice flour, though, and it looks like I have to get off the grains for awhile. But I might experiment with some different kinds to see if I can find some that work better for me. I have started baking with almond flour which is awesome for breads and cakes, cookies, etc. But I can't make pasta out of it... Noodle junkie..

And I think that makes a lot of sense--about your friend's system being stronger now to handle a teeny bit here and there. My nutritionist was saying that it can take up to a year for the intestine to heal and clear out all the gluten from the tissue. And different people manifest the illness differently too. Wouldn't you know.. . total carb junkie, and now I'm DENIED.
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Old 10-31-2010, 12:15 PM
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Keep us updated on your progress!
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Old 10-31-2010, 12:22 PM
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Thanks!
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Old 10-31-2010, 01:07 PM
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You should have a fructose tolerance test as well. (Good luck, my mom & SIL have celiacs, and my bf has Crohn's disease & fructose intolerance. It's not easy to deal with, that's for sure.)
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Old 10-31-2010, 01:39 PM
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Quote:
Originally Posted by kramer125 View Post
I'm intolerant to gluten, but I've never been officially diagnosed. When I was having severe symptoms, I begged 2 different doctors to test me, but they refused (totally ridiculous). I tried an elimination diet - I basically stopped eating all wheat products and my symptoms disappeared. I had been retaining water really badly - a pair of jeans would fit one day and then the next day I couldn't even get them buttoned. I gain 10-15 pounds in water weight, had severe constipation, and migraines. I changed my diet and lost the weight in a week - it was unbelievable.

I had been diagnosed with Hashimoto's Thyroiditis about a year and a half prior to this. I put on weight during that time and figured it was all related to my thyroid. Even when I was medicated, my symptoms didn't completed go away. I was beyond frustrated with doctors, no one would listen to me and all they would say was that my thyroid levels were fine on medication and that I shouldn't be having symptoms. I finally tried the diet and it was a miracle for me. In doing some research online, I found out that people with one autoimmune disorder (like Hashimoto's) are more likely to have another, like Celiac. I don't know if I indeed have Celiac, but there is no way I will go back to eating wheat, it makes me feel miserable.

If you are unable to get help from doctors, try eliminating certain foods from your diet and see how you feel. Good luck, I know it is tough!
Wow, I'm SO sorry that you were treated that way by your doctors--that is just WRONG. Unfortunately, some doctors totally invalidate what they don't understand, instead of admitting that they don't know how to handle a problem--like your doctors telling you that you shouldn't be having symptoms--HELLO, I AM having symptoms. Sorry you had such a tough time, and thanks for your advice.

My nutritionist is awesome--very sensitive and knowledgeable, and I have had so much success eliminating gluten (and my symptoms are classic Celiac symptoms) that unless things don't totally resolve with eliminating certain things, I think I know what I need to know. The problem now is that my body is just outright rejecting grains (and I know what you mean about how CRAZY the bloating, constipation, etc. is). I think that maybe my system is just, well, injured from the gluten for so many years, and I need to have a really gentle, careful diet until I'm fully healed.

Thanks so much!
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