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Old 05-17-2009, 09:19 PM
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ovarian cyst question

I was hoping someone here might be able to help me figure out if my symptoms are "normal" or something to be concerned about.

I recently (about a month ago) found out i had an ovarian cyst when it burst in the middle of the night (very painful!). I had an ultrasound, and I was told to come back in 3 months for another ultrasound to make sure it was getting better. Well, it's been a month, and i have still been having on-and-off pelvic pain (on the same side as the cyst). It's there everyday, and comes and goes throughout the day. I also sometimes feel a "tightening" sensation, like things are shifting and I can sometimes feel a lump on that same side. I've also had some pretty uncomfortable lower back pain over the past week or so (also on the same side, and only that side). I have a history of lower back pain though, so I have no idea if this is related. My Dr. didn't give me much of an idea of whether I would have continued pain like this, or if everything would start to feel better soon after the cyst burst. I've also heard that most ovarian cysts cause no pain at all. Can anyone tell me if it's normal to have pain this long? Should I be concerned about another one recurring?

Also, I have been on Mirena for about 7 months. My periods have been VERY irregular (I've only had 3-4, and of different durations). I read in the pamphlet that in clinical trials, there was a 10% increase in ovarian cysts. As I never had one before I had the IUD, now I'm worried that the IUD is causing the cyst, and I'll have to use another form of BC. Any thoughts on this?

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Old 05-17-2009, 09:49 PM
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I remember the doctor telling me that you are more likely to get ovarian cysts with Mirena. I've never had pain for that long though. It usually only comes during the time of ovulation. Since your cycle is not normal I would say that it could occur at any time. Unfortunately, it may very likely be an ongoing problem.
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Old 05-17-2009, 10:46 PM
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Quote:
Originally Posted by bestjess80 View Post
I've also heard that most ovarian cysts cause no pain at all.
Well, I've never had a ruptured cyst, so while I can't comment on that, I can say for sure that I can't imagine childbirth being much worse than my ovarian and paratubal cysts. They started with bad back pain at the end of the cycle a few months in a row, but finally became steady excruciating pain on both front and back (right side), finally bringing me to the hospital thinking it could be my appendix.

I would suggest you may want another ultrasound sooner, as the cyst may have either refilled, or there may be more, and i'd be slightly concerned about torsion with the "shifting" feeling you are describing.
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Old 05-17-2009, 11:46 PM
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I sometimes get the "shifting" feeling too, or like there's something extra in my left side (I have a small ovarian cyst)...supposedly mine's not serious though...

Best of luck getting better! I hope you are okay.
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Old 05-18-2009, 05:27 AM
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I have had many ovarian cysts that have ruptured. It IS incredibly painful, and for me, rivaled childbirth.
I remember being very sore for a while after each episode. One doctor told me that the cyst is like a water balloon and when you shift, it allows the fluid to escape, thus further irritating your surrounding organs causing a great deal of pain. Depending on the size, I suppose it could take a while to release all the fluid...?

Although, it seems to have been too long to still have such pain, so I think you should get an additional ultrasound to find out what's going on. I do know that taking BC pills help to decrease cysts, but I'm not sure about an IUD. I also had a Mirena IUD, but it had already been removed when the cysts started.

I hope you get it taken care of soon. I completely understand how you feel.

Last edited by Meg; 05-18-2009 at 10:51 AM.
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Old 05-18-2009, 06:08 AM
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thanks for the input guys

I will talk to my dr today. And Pam, yes, childbirth was definitely the closest type of pain I had ever experienced, although I had an epidural for that .
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Old 05-18-2009, 07:20 AM
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I had cysts as well and I still continue to get them but I will not EVER take bc pills EVER again.. I had cysts as well as a twisted ovary and the pain was completely unbearable. The nurse at the ER said if my ovary was twisted I would be writhing in pain so she was sure mine wasnt twisted. This was before the ultrasound they finally did. So I puked on her desk.

Did they do an internal ultrasound? That was how they finally ended up diagnosing me.
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Old 05-18-2009, 07:43 AM
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^yeah they did do an internal ultrasound. They told me there was no twisting, and that blood supply was fine, but who knows. Once you get cysts, is it typically something that will keep coming back or do they ever go away for good?
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Old 05-18-2009, 09:06 AM
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^yeah they did do an internal ultrasound. They told me there was no twisting, and that blood supply was fine, but who knows. Once you get cysts, is it typically something that will keep coming back or do they ever go away for good?
I'm not sure if its something that keeps coming back or not, I have heard some people say that once they have kids they seem to go away. I know that I continue to get them but I'm now off any bc of any kind, and bc is supposed to help keep them away but I think in my case it did the opposite.
Perhaps if you tried another form of bc that would work for you?
I was on ortho tricyclen or ortho something and I had cysts probably the whole time i was on it.
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Old 05-18-2009, 09:09 AM
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^yuck!! Part of me hopes that it's the Mirena that has caused this. I was on BC pills for 15 years or something (with no problems) before I had my first child, and then within 6 months of starting mirena, this happens. I suppose there's no way to know for sure though other than just trying something else
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Old 05-18-2009, 11:41 AM
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I just got my mirena out a couple weeks ago.. because it was causing major cyst activity (for lack of a better description, lol) and I started having non-stop periods (Instead of having it for 5-7 days and being off for 3 weeks, I had it for 3 weeks and was off for 5 days) the pain was intense and awful and my dr kept saying there wasn't really anything unusual in there.. Mine was apparently also leaking progesterone into my blood stream? idk, my dr has been doing tests and such and said the levels were VERY high and now they arent. I have to say, I feel GREAT without it! I just had my first normal cycle, too.. and it was as fantastic as a cycle can get.

*My first year with it I had normal periods, the 2nd year I had 2 and the 3rd is when all the issues started happening. I got mine in Sept 2006, fwiw.
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Old 05-18-2009, 12:45 PM
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I get ovarian cyst off and on and I get on BC off and on to help with them. They hurt like hell when they bust and you can still have pain for months after. The only thing that really helped me with cysts is the depo shot. Everything else made me crazy and gain weight and I just couldnt deal with it. Get the Mirena out if you think that is what is causing them. You most likely will keep getting them once they start.
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